This story was first published in digitalhealth.net
MPs call for more transparency on autism
The Westminster Commission on Autism has called for the introduction of an ‘anonymous register’ of people with autism to be included in the Quality Outcomes Framework (QOF).
The MPs believe the move would end the statistical ‘invisibility’ of autism in the healthcare system.
The report, named A Spectrum of Obstacles, examined how accessible healthcare was to people with autism. It found there was a significant gap in the healthcare system which affected autistic people and recommended a number of changes that could help combat it.
The inquiry advised that annual health checks should be provided for people with autism, new checks performed by the Care Quality Commission (CQC) and an Autism and Health Innovation Fund created to develop new aids to help people with autism access healthcare.
The report also cautioned that autistic individuals and family members must be fully involved in the data collection process to stem concerns about ‘information collection which potentially allows the identification of individual patients’.
The report concluded: “We are calling for the NICE Indicator Advisory Committee to develop a GP indicator and anonymous National Primary Care register for autistic patients as part of the QOF. Furthermore, the development of an indicator for the CCG Outcome Indicator Set should be considered.”
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