This story was first published in digitalhealth.net
DoH scraps data-sharing project
The Department of Health (DoH) in England has announced it has scrapped Care.data, its controversial data-sharing project.
Care.data was led by NHS England, together with the Health and Social Care Information Centre, and was due to be launched in 2014, but was paused after concerns were raised about uncertainty over what it would be used for. It was designed to bring health and social care information from different settings together to see what was working well and what could be done better.
The announcement to scrap the scheme has come after two reviews have been published by Dame Fiona Caldecott and the Care Quality Commission (CQC), examining data security in healthcare in England.
The reports recommended a series of proposals to better safeguard data in the NHS, including stronger government sanctions for malicious or intentional data breaches, together with tougher criminal sanctions against those who use any anonymised data to re-identify individuals.
They also called for out-of-date computer software and hardware to be replaced urgently and for patients to be offered an opt out system enabling them to stop their confidential data being used for anything beyond their direct care.
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