This story was first published in digitalhealth.net
Brexit negotiators urged to put patients first
The Brexit Health Alliance has urged Brexit negotiations to ‘put patients first’ following warnings children could miss out on lifesaving clinical trials when the UK leaves the EU.
Brexit threatens the UK’s ability to participate fully in collaborative trials and research activities, including those supporting children and adults with rare and complex diseases, whilst it also risks losing access to crucial EU infrastructure which implements the legislation authorising and managing clinical trials.
The Brexit Health Alliance has highlighted how decision-makers on both sides can mitigate the risks to patient access to medical research, referencing a number of examples exploring the value of UK-EU cooperation on rare diseases, such as a 2013 clinical trial for hemotherapy treatment for children and young adults with recurring neuroblastoma.
The alliance is requesting negotiators to secure a positive future cooperation model for research and innovation between the UK and the EU, which includes UK involvement in EU-funding programmes, as well as a welcoming UK migration system to attract researchers, innovators, and their families.
Niall Dickson, co-chair of the Brexit Health Alliance, said: “We need to make sure UK and EU patients do not lose out as the UK leaves the EU. If patients are to continue to benefit from early access to new and better treatments, health technologies and cutting-edge medicines, we have to be able to take part in multinational research programmes and clinical trials.
“We have achieved so much through cooperation with European partners and this must continue. This can be done if the will is there – what patients need is an agreement which enables maximum cooperation in research and innovation between the EU and the UK, and maximum alignment with the rules regulating medicines and medical devices across Europe. Let’s put patients first - both the UK government and European Commission must make reaching an agreement on future research cooperation a priority.”
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