Parkinson’s patients hiding symptoms, survey shows

According to a survey by Parkinson’s UK, over a third of people in the UK with Parkinson’s disease feel the need hide their symptoms.

The charity surveyed 1,868 people with the disease to find out how they managed their diagnosis.

The survey found that most sufferers felt the symptoms were not socially acceptable and were embarrassed to tell those who were close to them. The charity added it was concerned that many people were struggling alone with their diagnosis, which was having secondary affects on their emotional health.

Parkinson’s disease affects 127,000 people in the UK. The main symptoms include tremor, slowness of movement and rigidity.

One in three respondents claimed they had delayed informing friends and family about their diagnosis for fear of being stigmatised. In particular the survey highlighted younger people as being hit hardest by the diagnosis, reporting they felt as if their ‘world had ended’ and claiming they ‘didn’t know who to turn to’.

Steve Ford, chief executive at Parkinson's UK, said: "We are determined that each and every person with Parkinson's is aware of the support available so they can feel equipped to have these difficult conversations.

"We know that the right support, whether through family, friends or Parkinson's UK, is vital for those with the condition, to help them come to terms with their diagnosis and know that they're not alone.
We are here to help people find the support they need, when they need it."